Baby Jaxon Born With Most Of Skull Missing Lives Longer Than Expected

Baby Jaxon Buell was born with most of his brain and skull missing and wasn’t expected to survive pregnancy. How ever, he has defied all odds and has recently celebrated his first birthday.

Eagerly awaiting the arrival of their newborn baby, parents Brandon and Brittany Buell first got wind their was a problem with their baby the day after the second ultra sound.

This is when Brittany received a phone call from doctors, telling her there was a problem with the MRI results. Over the following few weeks they saw various doctors to diagnose the problem with the baby.

At the end of this stage doctors delivered the news of what could be wrong with the the baby. The three possiblities they had come up with were: Dandy walker syndrome – Spina bifida – Joubert syndrome.

By twenty three weeks the Buell’s realized their baby was malformed and may not survive pregnancy, and were advised to abort the pregnancy. The Buells were against abortion and decided to give their baby a chance.

Jaxon The Miracle Baby

Miracle baby, Baby Jaxon Buell survived the pregnancy and was born by caesarian section on 27th August 2014. He spent his first three weeks hooked up to multiple tubes in a Neonatal Intensive Care Unit in a Florida Hospital. While here brain surgeons where trying to understand his condition, but could not find the exact problem.

Once home baby Jaxon continued to scream and have multiple seizures, feeding tube issues and many hospital visits over the next few months. Soon after this he was taken to Boston Childrens Hospital a top U.S hospital for pediatric neurology.

This is when he was diagnosed with a rare neural tube birth defect called Anencephaly, a condition where a child is born without parts of the brain or skull. The Center for Disease Control and Prevention estimates Anencephaly effects 1 in every 4859 babies in the United States.

Soon after the diagnosis Baby Jaxon was then given new medication that made him a lot better. The doctors cannot guarantee the life expectancy for baby Jaxon, and said he will never walk or talk.

Brittany gave up work about a year ago to become a full time Mum to give Baby Jaxon one on one therapy 24/7. Jaxon is thriving with his Mum.

As this has left the family with only one wage coming in, one of Brandons work colleagues set up a GoFundMe page called Jaxon Strong to help cover the loss of Brittany’s income, and pay for Baby Jaxon’s medical expenses. This page has gone viral around the world with over $96,000 donated so far.